
A Family’s Trauma. A child who is alive because of Mum’s instinct
“Your daughters genetic testing came back that she has Hereditary Fructose Intolerance” You would think that would cause feelings of worry or sadness, but in that moment it was an overwhelming feeling of pure relief. Nieve had been unwell since birth, I was forever...
Listen to me!! Hear me! (How having HFI can make you feel)
This is a relatively short post (Do I hear a sigh of relief?). Last year I was asked to think about what a poster would look like, if I was trying to explain how having HFI has made me feel over the years. The poster was designed for the "Living Well" movement run...
My HFI Story: Carol Westwood
The following is a summary of my experience of having HFI. I have mentioned some specific events that I recall well, but there are countless others that I have not mentioned. My mum was apparently the first to recognise that, as a baby, something was making me vomit,...

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